TinyBreaths

How tiny breaths teach us big things

Suck, swallow, breathe…we’ve been here before!

Struthers is a champ, albeit a champ in a bit of pain. We couldn’t have asked for a better morning considering. At every step, God confirmed that we were doing the right thing. The bronchoscopy showed that he has been aspirating but it looks like he’s been efficient enough at coughing some of it out. But the lungs are inflamed and vocal cords very thickened and they and trachea definitely show damage from reflux. So I guess that part just confirmed second part of the procedure had to be done. The Pulmonologist came out and told me that 10 minutes after taking him back, so it made the next hour and a half a bit easier wait knowing that and that he was safely tolerating anesthesia. The Nissen fundoplication and feeding tube placement went amazingly well. They really aren’t even sure there was a hiatal hernia, perhaps just a small space where food was coming back up. But either way it wasn’t going to get better on its own and is all fixed now!

I hadn’t mentioned it before, quite frankly because I didn’t think about it until the pulmonologist said it again this morning, but they were a bit concerned that once he went on the ventilator for the anesthesia, he might have a harder time coming off because of his central apnea.  But he was amazing and tolerated extubation like a champ, and we haven’t seen any desaturations or apnic events thus far!  PRAISE THE LORD!  I didn’t  know how scared I was of this until this morning.

So steps for going home are suck, swallow, breathe.  Wait, I think I wrote that exact sentence a few months ago?  Yes, we’ve been at this place before, but now it should be a much quicker process.  He will get no food today, since we have to let his stomach heal.  So tomorrow we will begin slow feeds and see how he does.  He should quickly re-learn to swallow, but it will feel different because everything is tighter.  It might also take him a bit to realize that he doesn’t have to hold things in his mouth while protecting his airway, or hold his breath waiting for the reflux, or just want to keep eating for the sake of keeping things going one direction.  Those have all been learned coping behaviors, and I hope they will reverse themselves now that we’ve taken away the root cause!

All in all, I’m feeling very optimistic about where we are and where we are headed.  And while there will still be some underlying issues to take care of, I am looking forward to watching Struthers’ growth take off and getting to know my little man’s personality shine uninterrupted by pain and breathing issues.  What’s a little G-tube if it improves our overall quality of life?  I’m just sorry he had to shout that out to us in distress!

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1 Comment

  1. Cami Bremer

    May 5, 2016 at 12:00 am

    Comments imported from CaringBridge (12 comments):

    What a witness for our Lord Jesus Christ you are in demonstrating your faith! Strut is on our prayer list at Albany Bible Church!
    —Henry Crain, May 23, 2015

    So glad things went well yesterday! I’ll continue to pray for a speedy recovery for Strut and strength and wisdom for you and Eli.
    —Roya Seymore, May 23, 2015

    All the technical information here is amazing. So thankful you live in a place where all can be managed with safety and security! Thanks be for the medical staff, parents and Struthers!
    —Claire Stoeckel, May 22, 2015

    Sending prayers
    —Deborah Busch, May 22, 2015

    We praise God for answering prayers. Cami, I can’t imagine what you were going through this morning. Thank you for posting the updates.
    —brenda geer, May 22, 2015

    Praying that this will solve his problems and that he’ll recover quickly and be better than ever.
    —David Summerall, May 22, 2015

    So grateful all went well. Praying for this little guy has made me a better prayer warrior. God has His hand on y’all!
    —Milli Sample, May 22, 2015

    Love this little angel! He’s truly “Struttin'” his stuff, in true Struthers fashion. Now, if we can just get your sister’s baby convinced that it’s time for her to be born so Gee can visit BOTH grandlittles and love on them herself, I’ll feel a little better. I’m so proud of how you’ve handled the burdens you’ve faced, Cam. You, too, are a champ.
    —Coni Grebel, May 22, 2015

    So glad everything went well!!! Your little guy is a champ for sure!!
    —Mindi Brown, May 22, 2015

    Praise the Lord! God is good! I am so thankful that you are less concerned and worried now. At least you are in the right place for him to get better and you to be helped as well. Let them help you. Love you bunches.
    —Joy Breeden, May 22, 2015

    I’m so glad he’s getting the healing he needs. We are continually praying for baby Struthers and his awesome mommy and daddy.
    —Evania Ku, May 22, 2015

    Cami, you and your family are an inspiration. Thank you for sharing your faith.
    Cay Dykes, May 22, 2015

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