TinyBreaths

How tiny breaths teach us big things

Making Ourselves at Home

You may have figured out from the title of the post that we find ourselves back in the hospital. Just after the last update, Struthers began showing signs of respiratory distress that weren’t being alleviated by our home regiment of tweaking the oxygen intake and taking the nebulizer every 4 hours. Nor had he responded to the steroid boost started Tuesday. And sometimes, only minutes following the nebulizer treatment, he would begin wheezing again. Then there were a few scary coughing/choking/gagging spells during which he turned all kinds of colors and couldn’t catch his breath in between. So after several phone calls with the pulmonologist and trusted medical friends, we decided to drive him to Rocky Mountain Hospital for Children in Denver. Our pulmonologist said we could either wait until it was a true emergency (and we wouldn’t have time to get him to HIS physicians), or we could go ahead and come in for assessment. That was four days ago, and the only time I’ve even been outside these walls was when I moved my car from the ER lot yesterday.

Quick shoutout to this place–we were escorted directly back to an ER room from the front checkin (keep in mind we weren’t in acute distress and Struthers was sleeping soundly in his carseat). Struthers was quickly awakened, assessed, connected to monitors and was given a chest xray within 5 minutes of arrival. As it turns out, our pulmonologist had greased the wheels and was in contact with the ER physician. And though we still weren’t in acute distress at the moment, the ER physician did decide to admit him, as she could see his periodic desaturations and hear his wheezing already at the 2-hour post nebulizer point.

All of this came on quickly, and I’m learning that’s the way it goes with preemies. We really can’t be too careful, as the mildest of illness is enough to overwhelm Struthers’ still-immature system. Thus the obnoxious sign on our carseat that says “STOP! Don’t Touch–I’m a micro-preemie and your germs are too big for me!”…and I’m amazed that coughing strangers in a waiting room still reach out and touch (or let their kids).

–HAHA SO I STARTED THIS POST 2 DAYS AGO———–AND WE’RE CHANGING DIRECTIONS HERE–

So I started out this post very detailed, but now, after 5 days here, we are finally getting some answers and it probably just makes more sense to fill you in on where we are now.

  • Struthers does not have a cold as we originally thought. It turns out his extreme congestion is from the reflux he’s struggled with all along. That explains the sporadic ‘clear ups’.
  • Reflux is a funny thing for these preemies with chronic lung disease, because often it is difficult to distinguish what’s really going on. The reflux can also cause bronchospasm, which in turn irritates the lungs and doesn’t allow them to move air efficiently. Not to mention, they will eventually aspirate and accumulate liquid in their lungs leading to pneumonia. Most of the time, reflux is a problem babies outgrow as the sphincter ‘learns’ how to close after months being held open by a feeding tube. Unless there’s a structural problem that will prevent that…like a hiatal hernia. My little guy likes defying all the odds–don’t know where he got THAT from!
  • You may recall from the last post that we did see a surgeon last week about a procedure called a Nissen that would repair the hiatal hernia and create a ‘tube’ around the esophagus with the top of the stomach, tightening up the sphincter. But doing that procedure on an infant (it is done often, though) presents its own set of issues, especially in a child that may have some underlying GI issues as well. So when we left the surgeon’s office last week, it was with a GI consult in hand and hopes of being able to put it off or at least minimize issues from it. But let’s just say the answers have become very clear. We have to do something about this. We can’t even sort out what is primary respiratory now because the reflux is so bad, and my sweet little boy’s voice sounds like he’s been smoking for 70 years. He’s also refluxing continuously (it doesn’t start/stop around feeds), and none of us can protect our airway all the time, so he’s aspirating a bit and his little inflamed lungs just can’t handle that.
  • So surgery tomorrow (Friday 5/22) will be at 7:30am and will include the Nissen procedure/hiatal hernia repair, a G-tube (feeding tube) placement, a bronchoscopy and umbilical hernia repair. It might not solve all of our problems, but it will allow us to eliminate a complicating factor and take a look at his lungs in one fell swoop. A deciding factor in this is that it’s something that would have to be done relatively soon anyway, as congenital hiatal hernias that are symptomatic in infants are likely to just get bigger and cause more problems as he gets older, and there’s no medical management that will help (no amount of Prevacid or Nexium).
  • Struthers will have the G-tube in for 6-9 months, or as long as he needs it. It will mostly be used for venting, but also guarantees that he can get the sustenance he needs to continue thriving. While he looks chunky and healthy, he is still only 11 pounds at 6 months old, and we have no room for him to go backwards in that. Weight gain is also the #1 indicator for getting through the preemie respiratory issues in the first 6-7 years.
  • We have been incredibly blessed that our physicians we’ve been seeing outpatient have been visiting and consulting us here. Everyday. Have I mentioned I love them? They are amazing and coordinated, and they love my kid–so much that he smiles when he sees them, making them wonder how this kid could be so happy.
  • So speaking of incredibly blessed by medical professionals…We are not at the facility where Struthers was born. In fact, we’re clear across town, which in Denver translates to at least an hour away from the other facility. And yet TWO of his NICU nurses (night primary and day primary) have come across town just to see ‘their’ little guy. What an amazing blessing those two ladies are in our lives, and I look forward to Struthers growing up knowing how special they are!So please pray for a safe procedure and God’s hand to guide the surgeon’s hands, and all who care for him tomorrow. Thank you, once again, for keeping us going with your encouragement.IMG_2176

67 Comments

  1. Cami Bremer

    May 5, 2016 at 12:00 am

    Comments imported from CaringBridge (15 comments):

    It should be over by now. Praying for success and quick recovery. You are doing an outstanding job and Struthers’ mother. Love you bunches.
    —Joy Breeden, May 22, 2015

    I saw your Facebook post yesterday and set my alarm for 9:29 this morning to pray for Struthers’ procedures. So sorry he’s going through all this, but I’m praying that these procedures will lead to much better breathing and that he has a speedy recovery with no complications. Praying for strength for you and Eli too!
    —Roya Seymore, May 22, 2015

    Cami, you are the bravest, strongest woman I know. I missed that Eli is not with you. May you feel surrounded by all of the love from so many. We are with you along with God. Sending prayers and hugs. Will be so anxious to hear news but know you will be busy. Just know we are with you.
    —Catherine Rice, May 22, 2015

    Continuing to pray!
    —Rosalyn Forsyth, May 22, 2015

    Continuing prayers, Cami. I had seen your mom’s update yesterday and shared with Ted. We certainly hope all goes well.
    —Marilyn Gibson, May 22, 2015

    Praying for a safe procedure in agreement that all will go well! Praying for his respiratory system to recover and his continued development to be of good report! As a mom to a mom , the best thing I can ever suggest is to speak Gods word over his life! Power of a praying parent is an excellent book and resource. Written by Stormie Omartin. I pray for Struthers I love his smile and thank you for keeping us updated Cami!
    —Gillian Kruse, May 21, 2015

    Praying for God’s hand to be guiding the surgeon’s hands…that miracles will occur for Struther’s lungs! We love you both, Eli & Cami, even though we don’t see you often…love your little guy, too, & hope to meet him in person someday soon! Praying for healing in the mighty name of Jesus!
    —Heather George, May 21, 2015

    Praying for your sweet boy and for you!!
    —Susan Hill, May 21, 2015

    Wow there are a lot of amazing things going on! We certainly will be saying special prayers for all of you and for your doctors to be able to perform this procedure to perfection, Cami. You and Eli have been very blessed and now these challenges for your precious baby Struthers are totally in His hands. We Love you! Always, Rick and Billie
    —Rick and Billie Broome and Family, May 21, 2015

    Praying for God’s hand to guide the surgeons’s hands, and everyone else involved with Struther’s care. It is good to hear, despite the complications and difficulties, that you have an amazingly supportive group of doctors, nurses and caregivers, not to mention prayer warriors!
    —Lois Showalter, May 21, 2015

    I will be keeping you all close in my prayers.
    —Judith, May 21, 2015

    I love you, Cami
    —Mommy, May 21, 2015

    I’ll be thinking of your special little guy tomorrow morning and sending you strength. Much love.
    —Leslie Hickey, May 21, 2015

    Praying that everything goes smoothly tomorrow. Love you bunches. Claire
    —Claire Kirkpatrick, May 21, 2015

    Praying for you, Struthers and the medical staff. I saw your Mom’s post on FB this afternoon saying that Eli is in China and won’t be back for several days. Love y’all.
    —David Summerall, May 21, 2015

  2. Awaiting moderation

    Excellent posts. Thanks!

    viagra shipped overnight is viagra prescription in canada
    viagra pills
    testimonies of viagra use – https://genericviagrantx.com

    DavidAsync
    Terencerub
    Victorbit

  3. Awaiting moderation

    You explained this wonderfully.

    a href order viagra online a find search viagra edinburgh pages online
    viagra without a doctor prescription
    novocaine medications mixed with viagra – https://genericviagrantx.com

    DavidAsync
    Terencerub
    Victorbit

  4. Awaiting moderation

    Nicely put. Kudos!

    viagra 10mg 20mg teen wins teddybear with viagra shirt
    generic viagra
    find viagra free sites computer search – https://genericviagramsl.com

    DavidAsync
    Terencerub
    Victorbit

  5. Awaiting moderation

    Cheers! An abundance of forum posts.

    cheap viagra prices viagra no prescription required
    cheap viagra
    blood high pressure viagra – https://genericviagrantx.com

    DavidAsync
    Terencerub
    Victorbit

  6. Awaiting moderation

    Thanks, I appreciate this.

    taking viagra and micardis atenolol viagra interactions
    cheap viagra
    viagra p5 inhibitor – https://genericviagrantx.com

    DavidAsync
    Terencerub
    Victorbit

  7. Awaiting moderation

    Nicely put. Many thanks!

    overnight generic viagra viagra generic canada
    generic viagra 100mg
    women consume viagra – https://genericviagrarcp.com

    DavidAsync
    Terencerub
    Victorbit

  8. Awaiting moderation

    You actually explained that exceptionally well.

    file viewtopic t 144 viagra cumparare viagra
    generic viagra 100mg
    viagra online best prices – https://genericviagrantx.com

    DavidAsync
    Terencerub
    Victorbit

  9. Awaiting moderation

    You actually mentioned that adequately.

    viagra turkey the best natural viagra alternative
    cheap viagra
    vardenafil vs viagra – https://genericviagrarcp.com

    DavidAsync
    Terencerub
    Victorbit

  10. Awaiting moderation

    Fine content. Cheers.

    viagra and eating a meal free prescription help viagra
    viagra online
    more sperm on viagra – https://genericviagrantx.com

    DavidAsync
    Terencerub
    Victorbit

  11. Awaiting moderation

    You stated that superbly!

    edinburgh pages search viagra report viagra age 23
    viagra for women
    how to buy viagra for cheap – https://genericviagramsl.com

    DavidAsync
    Terencerub
    Victorbit

  12. Awaiting moderation

    Great tips. Regards!

    viagra shop uk best deals on cialis viagra
    buy viagra online
    viagra erections – https://genericviagramsl.com

    DavidAsync
    Terencerub
    Victorbit

  13. Awaiting moderation

    Lovely data, Thanks a lot!

    viagra for stay up viagra models name
    buy generic viagra
    viagra free pill – https://genericviagramsl.com

    DavidAsync
    Terencerub
    Victorbit

  14. Awaiting moderation

    You’ve made your point.

    how much should generic viagra cost online generic viagra overnight
    buy viagra online
    cialis viagra comparison – https://genericviagramsl.com

    DavidAsync
    Terencerub
    Victorbit

  15. Awaiting moderation

    Superb posts. Thanks a lot!

    viagra today will hydrochlorothiazide affect viagra
    viagra pills
    viagra medicamentos similares – https://genericviagrantx.com

    DavidAsync
    Terencerub
    Victorbit

  16. Awaiting moderation

    Many thanks! Loads of write ups!

    derivation of word viagra avarage age viagra
    viagra pills
    affiliate generic viagra – https://genericviagrarcp.com

    DavidAsync
    Terencerub
    Victorbit

  17. Awaiting moderation

    You reported it fantastically!

    viagra ad in magazine viagra bloody nose
    viagra for sale uk
    re buy viagra – https://genericviagrarcp.com

    DavidAsync
    Terencerub
    Victorbit

  18. Awaiting moderation

    Cheers. Great stuff.

    spain viagra viagra beer
    viagra pills
    a href buy viagra online a – https://genericviagrantx.com

    DavidAsync
    Terencerub
    Victorbit

  19. Awaiting moderation

    You actually explained it wonderfully!

    viagra online no doctor prescription best price for sildenafil generic viagra
    generic viagra 100mg
    can viagra make penis bigger – https://genericviagrantx.com

    DavidAsync
    Terencerub
    Victorbit

  20. Awaiting moderation

    You mentioned this terrifically.

    servant on viagra testing viagra
    viagra without a doctor prescription
    viagra like drugs – https://genericviagrarcp.com

    DavidAsync
    Terencerub
    Victorbit

  21. Awaiting moderation

    You said it very well..

    viagra canada review rx canada viagra
    viagra without a doctors prescription
    generic viagra blue pill 25mg – https://genericviagramsl.com

    DavidAsync
    Terencerub
    Victorbit

  22. Awaiting moderation

    You’ve made your point.

    acupuncture oct ivf women viagra levitra cialis new viagra
    viagra pills
    cialis or viagra which is best – https://genericviagrantx.com

    DavidAsync
    Terencerub
    Victorbit

  23. Awaiting moderation

    Many thanks. I enjoy this!

    viagra in saudi arabia viagra 100mg free shipping
    generic viagra
    viagra tylenol – https://genericviagramsl.com

    DavidAsync
    Terencerub
    Victorbit

  24. Awaiting moderation

    Very good stuff. Many thanks!

    woman on viagra celais versu viagra one versus another
    viagra without a doctor prescription
    viagra on-linw into singapore – https://genericviagrantx.com

    DavidAsync
    Terencerub
    Victorbit

  25. Awaiting moderation

    This is nicely said. .

    viagra in action photos viagra before and after pics
    cheap viagra
    viagra uk cheap purchase buy – https://genericviagrarcp.com

    DavidAsync
    Terencerub
    Victorbit

  26. Awaiting moderation

    Many thanks, I enjoy it!

    viagra sex shops vicodin viagra cialis
    generic viagra 100mg
    1cialis compare levitra viagra – https://genericviagrantx.com

    DavidAsync
    Terencerub
    Victorbit

  27. Awaiting moderation

    Thanks, Lots of forum posts.

    cheap viagra pills what is viagra prescribed for
    generic viagra online
    real viagra from canada – https://genericviagrarcp.com

    DavidAsync
    Terencerub
    Victorbit

  28. Awaiting moderation

    Point effectively utilized!!

    blues song viagra commercial viagra tv commercials
    viagra without a doctor prescription
    can i buy uae viagra – https://genericviagrarcp.com

    DavidAsync
    Terencerub
    Victorbit

  29. Awaiting moderation

    Amazing a good deal of superb advice.

    does viagra make you erect women talk about viagra
    cheap viagra
    viagra steroid cartoons – https://genericviagrarcp.com

    DavidAsync
    Terencerub
    Victorbit

  30. Awaiting moderation

    Incredible quite a lot of valuable knowledge.

    make natural viagra lowest price generic viagra
    buy generic viagra
    arrhythmia viagra – https://genericviagramsl.com

    DavidAsync
    Terencerub
    Victorbit

  31. Awaiting moderation

    Good tips. Kudos.

    viagra price shopper does viagra make your dick bigger
    generic viagra online
    alternative til viagra – https://genericviagrarcp.com

    DavidAsync
    Terencerub
    Victorbit

  32. Awaiting moderation

    You reported it wonderfully.

    generic cheap viagra edinburgh viagra find sites posted
    viagra without a doctor prescription
    canadian pharmacy viagra – https://genericviagramsl.com

    DavidAsync
    Terencerub
    Victorbit

  33. Awaiting moderation

    Amazing quite a lot of useful facts!

    uaw union gets viagra can i buy viagra online
    viagra without a doctor prescription
    dog heart failure viagra – https://genericviagrarcp.com

    DavidAsync
    Terencerub
    Victorbit

  34. Awaiting moderation

    Very well voiced of course. !

    fda on viagra generic viagra is safe
    generic viagra online
    heart herbal mixing viagra – https://genericviagramsl.com

    DavidAsync
    Terencerub
    Victorbit

  35. Awaiting moderation

    Valuable data. Appreciate it.

    london ontario viagra edinburgh uk viagra pages search charles
    viagra without a doctor prescription
    viagra no prior prescription – https://genericviagrantx.com

    DavidAsync
    Terencerub
    Victorbit

  36. Awaiting moderation

    You actually expressed that very well.

    buy viagra cialis online viagra and emphsema
    viagra for sale uk
    786 heart herbal mixing viagra 1132 – https://genericviagramsl.com

    DavidAsync
    Terencerub
    Victorbit

  37. Awaiting moderation

    Wow a good deal of useful tips!

    niagra to viagra usps delivery viagra
    viagra for sale uk
    viagra increased heart rate – https://genericviagramsl.com

    DavidAsync
    Terencerub
    Victorbit

  38. Awaiting moderation

    You said it very well.!

    viagra and peyronie’s delaware caverta generic viagra veega
    viagra without a doctor prescription
    what pharmacies sell viagra – https://genericviagrantx.com

    DavidAsync
    Terencerub
    Victorbit

  39. Awaiting moderation

    Thanks a lot! Fantastic information!

    wholesale viagra wanted to buy viagra
    viagra without a doctors prescription
    masturbating with viagra – https://genericviagramsl.com

    DavidAsync
    Terencerub
    Victorbit

  40. Awaiting moderation

    You made your stand extremely effectively!!

    how to break a viagra pill viagra round brown pill
    viagra generic
    time to take effect viagra – https://genericviagrarcp.com

    DavidAsync
    Terencerub
    Victorbit

  41. Awaiting moderation

    Very good advice. With thanks!

    viagra healty improve prolong discount viagra discount viagra url
    generic viagra 100mg
    viagra natural – https://genericviagramsl.com

    DavidAsync
    Terencerub
    Victorbit

  42. Awaiting moderation

    You’ve made your position quite effectively!!

    find sites search viagra computer viagra fedex
    buy generic viagra
    does medicare rx cover viagra – https://genericviagramsl.com

    DavidAsync
    Terencerub
    Victorbit

  43. Awaiting moderation

    Awesome information, Many thanks.

    pharmacy viagra cialis levitra link viagra blogspot com
    generic viagra 100mg
    taking old viagra – https://genericviagramsl.com

    DavidAsync
    Terencerub
    Victorbit

  44. Awaiting moderation

    You said it adequately.!

    miss viagra fest spring river how safe is viagra
    cheap viagra
    viagra alternetives – https://genericviagrantx.com

    DavidAsync
    Terencerub
    Victorbit

  45. Awaiting moderation

    You said this well!

    generic lowest price viagra viagra long
    viagra 100mg
    viagra best buy diet pills – https://genericviagrantx.com

    DavidAsync
    Terencerub
    Victorbit

  46. Awaiting moderation

    Truly plenty of good tips.

    order viagra 1 viagra online uk prescrition
    viagra for women
    can viagra lower your bp – https://genericviagrantx.com

    DavidAsync
    Terencerub
    Victorbit

  47. Awaiting moderation

    Wonderful write ups. Cheers.

    everything about viagra charlie sheen viagra
    cheap viagra
    kaboom viagra – https://genericviagrarcp.com

    DavidAsync
    Terencerub
    Victorbit

  48. Awaiting moderation

    Many thanks, Quite a lot of forum posts!

    viagra without a presciption low-priced buy cheap viagra online garland
    generic viagra online
    cialis levitra viagra – https://genericviagrantx.com

    DavidAsync
    Terencerub
    Victorbit

  49. Awaiting moderation

    You suggested this adequately!

    edinburgh uk news pages viagra girls that take viagra
    generic viagra
    viagra and purchase – https://genericviagramsl.com

    DavidAsync
    Terencerub
    Victorbit

  50. Awaiting moderation

    Thanks a lot! A good amount of tips.

    chinese viagra cialas viagra in clubs
    buy viagra online
    viagra melt aways – https://genericviagramsl.com

    DavidAsync
    Terencerub
    Victorbit

  51. Awaiting moderation

    Well expressed really. !

    water melon rine viagra viagra pulmonary fibrosis
    viagra 100mg
    viagra heart disease – https://genericviagramsl.com

    DavidAsync
    Terencerub
    Victorbit

  52. Awaiting moderation

    Helpful forum posts. Many thanks!

    imformation on viagra viagra used for penis enlargement
    viagra without a doctor prescription
    viagra dicks – https://genericviagramsl.com

    DavidAsync
    Terencerub
    Victorbit

  53. Awaiting moderation

    You actually reported it wonderfully!

    viagra cialis or levitra purchasing viagra
    buy viagra online
    viagra studys in rats – https://genericviagrantx.com

    DavidAsync
    Terencerub
    Victorbit

  54. Awaiting moderation

    Seriously many of excellent knowledge!

    fast acting viagra reasons for taking viagra
    generic viagra 100mg
    ebay dding buy viagra – https://genericviagrantx.com

    DavidAsync
    Terencerub
    Victorbit

  55. Awaiting moderation

    Appreciate it, An abundance of data.

    take viagra cialis natuaral viagra
    viagra without a doctors prescription
    viagra max complaints – https://genericviagrarcp.com

    DavidAsync
    Terencerub
    Victorbit

  56. Awaiting moderation

    Excellent write ups. Thanks.

    can i get viagra without prescription emanuelle viagra
    generic viagra 100mg
    cheap generic viagra without prescription – https://genericviagrantx.com

    DavidAsync
    Terencerub
    Victorbit

  57. Awaiting moderation

    You actually reported that really well.

    forum viagra take viagra and cialis
    generic viagra
    nature’s viagra – https://genericviagramsl.com

    DavidAsync
    Terencerub
    Victorbit

  58. Awaiting moderation

    You actually suggested that really well.

    soft viagra directions online prescription viagra phentermine meridia adi
    generic viagra 100mg
    search viagra edinburgh phentermine find – https://genericviagrantx.com

    DavidAsync
    Terencerub
    Victorbit

  59. Awaiting moderation

    Kudos. I appreciate it.

    buy cheap viagra india generic viagra
    viagra generic
    female viagra pulmonary hypertension – https://genericviagramsl.com

    DavidAsync
    Terencerub
    Victorbit

  60. Awaiting moderation

    You actually suggested it adequately.

    buy online securely viagra viagra success rate
    generic viagra
    never mix steroids and viagra – https://genericviagrarcp.com

    DavidAsync
    Terencerub
    Victorbit

  61. Awaiting moderation

    Fantastic posts. Thank you.

    cyprus chemist viagra viagra duration of action
    generic viagra
    buy viagra online in the uk – https://genericviagrantx.com

    DavidAsync
    Terencerub
    Victorbit

  62. Awaiting moderation

    You said it very well..

    buy viagra plus cialis for $69 viagra tadalafil research
    viagra for sale uk
    viagra online includes consultation – https://genericviagrantx.com

    DavidAsync
    Terencerub
    Victorbit

Leave a Reply

Your email address will not be published.

*

© 2020 TinyBreaths

Theme by Anders NorenUp ↑